Monday, August 29, 2011


Ryan had a fairly uneventful night. His nurse was able to turn his dopamine off but it had to be turned back on during the night. His BP is being stubborn and not exactly wanted to rid itself from the dopamine. He is still however remains on the lowest dose he can be on with his dopamine. His urine decreased again overnight and the doctor is giving him another dose of albumin in order to kick start his urine output again. He will receive Lasix again at five o’clock so we will wait and see how his kidneys respond to this treatment. All in all these things are what is to be expected with little ones his age/size.


Ryan received his first “big boy” line today. His PIV’s weren’t working as they should and Nurse B decided that she’d ask the doctor about placing a PICC line so he would have a guaranteed line in place for his medicines. The doctor agreed that it would be a good idea to place a more permanent line while he still had good veins left. Nurse B and S placed the line with ease. Afterwards they told us that they were able to place the line with only one stick! They also told us that they prayed before the line was placed. It is wonderful to have such faithful women caring for our son! In all honesty I’m more relieved that he now has an actual “line” other than his umbilical lines. It means that should anything go wrong and his other lines stop working at the same time (which is completely our luck) that he has a central line that he can get whatever medications that he needs at any given time.

Ryan received the first of many blood transfusions from his personal direct donor! Dean was tickled pink when he heard that his unit of blood had made it to the hospital. We were even fortunate enough to see him receive his first 5mls of blood. Dean was sure he would get rowdy but he only showed off just a bit as the blood entered his body. I’m sure we’ll have many many many more years for his blood to churn inside him and make him into his “daddy’s boy.”

We were blessed with some very good news today! Ryan had an Echocardiogram to check the functioning of his heart. They were also looking to make sure that the duct that allows blood flow to pass through the heart while he was in utero had closed as it should when the umbilical cord was clamped. The cardiologist said that the functioning of the heart in little ones his age was very vital to his recovery/growth. Thankfully the doctor informed us that he had a very good working heart and that the duct has closed on its own! They will recheck it again in order to make sure that it doesn’t reopen if he gets under great stress but for now it is closed and functioning very well!!

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